One of my worst fears has come true. My baby's heart isn't working right.
We found out on October 4th that the Ped. heard a loud murmur. She told us that she'd be referring us to a cardiologist to chech into it. Then I read that if the child is very active prior to an exam, there can be a murmur heard where the actually was none so I held out hope that it was the case with Tanner.
We again saw his Ped on the 17th and the murmur was still present so that hope was gone.
On the 18th he saw Dr. Ritz at duPont Hospital for Children and was diagnosed with Mild Aortic Stenosis and Mild Regurgitation. Unlike a murmur, he will never outgrow this. There's hope that it will never progress but if it does the risks are that he'll need meds to help control it, surgery to repair it or if the blood leaking back in causes his heart to enlarge-possible Heart Transplant.
I'm so scared. I know I should really just hope for the best, but when the worst case senario is Heart Transplant it's hard not to be terrified. I knew that either of my kids could be born with or aquire a heart condition because of my cardiac history, but I lost myself in the hope that since they weren't diagnoses at birth, they were fine.
I was proven wrong. Parents who have children with special needs, need special support. Other's think that it's only hard when constant care or surgical proceedures are needed. They don't understand that you're always waiting for the next shoe to drop.
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